General endocrine & medical

• Endocrine Online
• Public Health Agency of Canada
• The Hormone Foundation
• European Society for Pædiatric Endocrinology: English-language handouts
• HealthLink BC
• Health & Drug Coverage BC
• MedlinePlus Health Information: Endocrine System
• DrugWatch.com
• Endocrine Society: Endocrine Transitions

Growth disorders

• The Human Growth Foundation
  • Patterns of Growth
  • Child Growth Hormone Deficiency
  • Idiopathic Short Stature
  • Insulin-Like Growth Factor I Deficiency
• Little People of America
• The Hormone Foundation: Growth Hormone Deficiency in Children
• The MAGIC Foundation
  • MAGIC-Canada
  • Brochure: Childhood Growth Hormone Deficiency
  • Brochure: Adult Growth Hormone Deficiency
  • Brochure: Constitutional Growth Delay in Children
  • Brochure: Idiopathic Short Stature
  • Brochure: IGF-1 Deficiency
  • Brochure: Failure to Thrive
  • Brochure: Psychosocial Issues of Growth-Delayed Children
  • Brochure: Dental Problems Associated with Growth Hormone Deficiency
  • Brochure: FAQ When Beginning Growth Hormone Therapy
  • Brochure: Small for Gestational Age
  • Brochure: Intrauterine Growth Restriction
• Roche Canada: Nutropin® information
• Genentech USA (Nutropin®): Growth Hormone Site
• EMD Serono Canada (Saizen®): Growth Therapies
• Eli Lilly Canada (Humatrope®)
• Sandoz Canada (Omnitrope®)
• Pfizer Canada (Genotropin®)
• Novo Nordisk Canada (Norditropin®)

Adrenal disorders

• The National Adrenal Diseases Foundation
• The Magic Foundation
  • Congenital Adrenal Hyperplasia
  • Cushing Syndrome
• AAP Technical Report: Congenital Adrenal Hyperplasia
• Climb Congenital Adrenal Hyperplasia UK Support Group
• CARES (Congenital Adrenal Hyperplasia Research, Education and Support) Foundation
• Congenital Adrenal Hyperplasia: A Handbook for Parents (Texas)
• NIDDK Patient Information: Cushing's Syndrome
• NICHD Patient Information: Cushing Syndrome
• Cushing's Support and Research Foundation
• Canadian Addison Society
• Managing Your Addison's
• NIH Patient Information: Adrenal Insufficiency and Addison's Disease
• Great Ormond Street Hospital: Cortisol Deficiency
• United Leukodystrophy Foundation
• NINDS Patient Information on Adrenoleukodystrophy

Parathyroid disorders

• NIDDK Patient Information: Primary Hyperparathyroidism
• see also DiGeorge syndrome below
• Parathyroid.com
• Online module: Calcium and phosphorus disorders (2016/09/02)

Diabetes insipidus & histiocytosis

• NIDDK Patient Information: Diabetes Insipidus
• Nephrogenic Diabetes Insipidus Foundation
• Histiocytosis Association of America
• Histiocytosis Association of Canada

Pituitary and brain tumour disorders

Septo-optic dysplasia & optic nerve hypoplasia

• The MAGIC Foundation: Optic Nerve Hypoplasia/Septo Optic Dysplasia
• NIH: Septo-Optic Dysplasia

Central precocious puberty

• The MAGIC Foundation: Precocious Puberty
• What Parents Should Know About Central Precocious Puberty (Abbott Laboratories)

Kallmann syndrome

• GnRH Network: Learn about GnRH Deficiency / Kallmann Syndrome

Polycystic ovary syndrome, hirsutism and premature ovarian failure

• PCOS Awareness Association
• Coping with Polycystic Ovary Syndrome
• NICHD Patient Information: Polycystic Ovary Syndrome (PCOS)
• The Hormone Foundation: Polycystic Ovary Syndrome
• PCOS: A Guide for Parents
• Early Menopause
• Endocrine Online: Primary Ovarian Insufficiency
• Endocrine Online: Hormone Replacement Therapy for Young Women

Sexuality & sexual differentiation disorders

• BCCH Youth Toolkit Sexual Health Resources
• Island Sexual Health Society: Reading List for Parents & Kids
• Options for Sexual Health (formerly Planned Parenthood Association of BC)
• dsdfamilies
• • The Story of Sex Development
  • Top Tips for Talking about Differences of Sex Development
  • Brochure: The first days… When your baby is born with genitals that look different
    • Canadian version
• Parents, Families and Friends of Lesbians and Gays (PFLAG) Canada
• Parents, Families and Friends of Lesbians and Gays (PFLAG) USA
• Intersex Society of North America
• interACT Advocates for Intersex Youth
• BCCH Booklet: It's All Chemistry, for Girls (to order)
• BCCH Booklet: It's All Chemistry, for Boys (to order)
• BCCH Booklet: This is Slow Growing But Am I Stuck? (to order)
• Consortium on the Management of Disorders of Sex Differentiation
  • Clinical Guidelines for the Management of Disorders of Sex Differentiation in Children
  • Handbook for Parents
• Androgen Insensitivity Syndrome Support Group UK
• InterConnect (formerly AIS-DSD Support Group of North America)
• Urology Care Foundation: Hypospadias

Prader–Willi syndrome

• Foundation for Prader–Willi Research Canada
  • New parent package
• Foundation for Prader–Willi Research USA
• British Columbia Prader–Willi Syndrome Association
• Ontario Prader–Willi Syndrome Association
• Prader–Willi Syndrome Association (USA)
• Prader–Willi Syndrome Association (UK)
• International Prader–Willi Syndrome Organisation
• GEMSS: Prader–Willi Syndrome

Turner syndrome

• Turner Syndrome Society of the US
  • Guidelines & Checklists
  • Turner Syndrome: A Guide for Families
  • Turner Syndrome: Individual/Family Clinical Practice Guidelines
  • Turner Syndrome: Healthcare Checklist
• Turner Syndrome Society of Canada
• L'association du Syndrome de Turner du Québec
• NICHD Patient Information: Turner Syndrome
• GEMSS: Turner Syndrome

Williams syndrome

• Williams Syndrome Association
• Canadian Association for Williams Syndrome
• Williams Syndrome Foundation (UK)
• GEMSS: Williams Syndrome

DiGeorge syndrome & velocardiofacial syndrome

• 22q11.2 Society
• The Dalglish Family 22q Clinic (for adults, Toronto)
• 22q Foundation (Australia and New Zealand)
• 22q and You Center (Philadelphia)
• International 22q11.2 Foundation
• GEMSS: 22q Deletion Velocardiofacial Syndrome
• Online module: Calcium and phosphorus disorders  (2016/09/02)
  

Russell–Silver syndrome

• The MAGIC Foundation: Russell–Silver Syndrome
• GEMSS: Russell–Silver Syndrome

Noonan syndrome

• GEMSS: Noonan Syndrome

McCune–Albright syndrome

• The MAGIC Foundation: McCune–Albright Syndrome—Fibrous Dysplasia
• The Fibrous Dysplasia/McCune–Albright Alliance
• NICHD Patient Information: McCune–Albright Syndrome

Klinefelter syndrome

• AXYS: Association for X and Y Variations
  • Book: Living with Klinefelter Syndrome (47,XXY) Trisomy X (47,XXX) and 47,XYY: A Guide for Families and Individuals Affected by Extra X and Y Chromosomes
• Klinefelter Syndrome Association UK
  • The Learning Needs of Boys with KS: Information for Teachers & Parents
• NICHD Patient Information: Klinefelter Syndrome
• GEMSS: Klinefelter Syndrome

Marfan syndrome

• National Marfan Foundation
• GEMSS: Marfan Syndrome

Metabolic bone disease & osteoporosis

• X-Linked Hypophosphatemic Rickets Network
• Online module: Calcium and phosphorus disorders (2016/09/02)
• Osteoporosis Society of Canada
• NIAMS/NIH Osteoporosis and Related Bone Diseases National Resource Center
  • Osteogenesis Imperfecta Page
  • Booklet: Osteogenesis Imperfecta Overview
  • Kids and Their Bones: A Guide for Parents
• National Osteoporosis Foundation
• Osteogenesis Imperfecta Foundation
  • Bisphosphonates Q&A
• OI parents (Yahoo Group)
• Osteogenesis Imperfecta Federation Europe
• Children's Brittle Bone Foundation

Hyperinsulinism & hypoglycemia

• Congenital Hyperinsulinism Center (CHOP)
• Congenital Hyperinsulinism International

Genetics resources

• The Alliance of Genetic Support Groups
• Online Mendelian Inheritance in Man
  
• NIH National Human Genome Research Institute: Talking Glossary of Genetic Terms
• GEMSS: Genetics Education Materials for School Success
  

Rare diseases & support groups

• NIDDK Directory of Endocrine Diseases
• Canadian Organization for Rare Disorders (CORD)
• Rare Disease Foundation
• The National Organization of Rare Disorders
• NIH Office of Rare Diseases
• Unique: The Rare Chromosome Disorder Support Group (UK)
• Genetics Home Reference
• Birth Defect Research for Children
• Family Support Institute of BC
• Health Canada Online
  • Childhood & Adolescence
• ORPHA.NET
• Exceptional Parent / Pedianet
• Vela Microboards
• MedicAlert Canada
  • No Child Without® Program

Other disorders

• NIDDK Patient Information: Multiple Endocrine Neoplasia Type 1
• NICHD: Pheochromocytoma & Paraganglioma
• Association for Multiple Endocrine Neoplasia Disorders (AMEND)
• Children's Tumour Foundation: Ending Neurofibromatosis Through Research
• von Hippel-Lindau Family Alliance
• American Autoimmune Related Diseases Association
• Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers
• Cancer SurvivorLink